We understand that as a parent, family member or an individual with cerebral palsy (CP), there are many different challenges in your life that others don’t fully understand.
That’s why we have our Member Services – a free service that provides information, support and advice, and can help link you into our cerebral palsy network and community.
We understand cerebral palsy
For over 20 years we have been serving individuals and families living with CP and/or other neurological conditions. As an organisation led by parents and families, we have always been able to truly understand the needs of our community. That means we have developed relevant and necessary services to help individuals and families flourish and thrive.
Who can access Member Services?
Our Member Services is for individuals with CP and/or other neurological conditions, their family members, friends and support networks.
Why would I use Member Services?
- You have cerebral palsy and/or other neurological conditions and may be looking for information regarding therapies and treatments.
- You may have just received a diagnosis of cerebral palsy/neurodevelopmental disorder for your child and not know what to do next.
- You may want to connect with others who understand you and your day to day needs and challenges.
- You might be seeking referrals to appropriate services in your local area.
How can I get in touch?
CPSN offers a free telehealth service to our members, to provide support when you need it. It gives better insight into how people manage cerebral palsy in their lives.
The primary role of our telehealth nurse is to develop care plans and provide education and navigation for CPSN members of all ages. Our telehealth nurse allows us to gain a greater insight into the needs of our members and help connect them to the right supports.
Who can access our telehealth service?
Our telehealth service is for individuals with cerebral palsy and/or other neurological conditions, their family members, friends and support networks. This allows anyone in Victoria to have access to the service for themselves, or for someone they care for who has cerebral palsy.
Part of this role is funded by a national telehealth nurse case management pilot program that is being coordinated by the Centre for Community-Driven Research.
Meet our nurse
Amy Seeary is a registered nurse with over 16 years of experience in public health care and the university sector. Amy is also mum to twin boys with cerebral palsy, so she understands the experiences of individuals and families from diagnosis to beyond. Learn more about Amy's wealth of expertise and personal experience.
NDIS Pre-Planning and Plan Review
At CPSN we realise gaining access to the NDIS or understanding your current NDIS plan can be a complex and confusing process.
Some frequently asked questions we receive from participants include:
- What questions will the NDIS ask me and why?
- What is the NDIS process and how long will it take?
- What supports/funding am I entitled to?
- Why have I not been funded for a certain support?
- How do I prepare for a Plan Review/Access Request?
- I am not happy with my plan, what can I do about it?
- My request for funding has been denied, where can I get help?
We offer our members a free service to help you navigate through these difficult questions. We can let you know what answers are likely to be, based on your individual situation.
Our friendly and experienced Support Coordination Team will work together with our Telehealth Nurse to understand what part of the journey you are at, and how we can best assist you.
The most common ways that we help our participants are:
- Explain the process the NDIS is undertaking and where you are at in that process.
- Evaluate all your options at each stage of the process.
- Assist in coordinating with your support network to provide the correct evidence the NDIS needs for their decision-making.
- Help you understand why you may have been denied access, or perhaps why a particular support hasn’t been funded.
- Evaluate your current plan and help you decide what is working for you, what isn’t, and what further supports you may be able to request.
How can I get started?
Call us on 03 9478 1001 during business hours Monday to Friday from 9am to 5pm or email us directly at email@example.com. You can also arrange a face to face meeting at our Coburg office or arrange an online meeting.
Preparing for my son's NDIS meeting was a daunting process. Although I felt reasonably organised in regards to my paperwork, the prospect of the actual meeting terrified me. When I received 'the call' and a date for the meeting, panic set in. The following day, completely out of the blue, Jacinta from the CPSN phoned me as she was checking how members in the current rollout area were going with their preparations. It felt like a guardian angel had just dropped out of the sky. She gave me some great advice and offered to come to my meeting. I accepted her offer in a heartbeat. Knowing that I had someone in my corner (the NDIS transition coordinator!) whose priority was ensuring the best outcome for my son, alleviated a huge amount of stress. The meeting went very well- I felt prepared, calm and above all- supported. I would highly recommend utilizing the pre-planning services offered by the CPSN.
Staff had good knowledge of the NDIS process and were able to educate us on how to organise our proposals. This included the use of language and terms to use to explain our needs. The experience and skills these ladies had in their fields helped us to feel comfortable knowing they had an understanding of our situation. There were open discussions and a professional approach. At no time did we feel that we could not discuss our concerns and fears for our loved one needing support.