1. Our Vision & Purpose
CPSN is part of your team, together we thrive.
In partnership with our members, we share knowledge, create connections and provide support.
2. Our history
CPSN was born in 1995, when 6 parents of children with cerebral palsy formed a parent support group to share information and connect with others who understood the issues and challenges they faced. It didn’t take long to discover they were far from alone.
As the committee met other parents, they were invited to join, and within a few years, the group had grown to almost 50 families. In 1997, we evolved into a membership-based not-for-profit organisation and officially became the Cerebral Palsy Support Network (CPSN). In these early days we empowered other parents by running regular support groups and information sessions for members as well as presenting at conferences representing the consumer voice.
As an organisation governed and led by parents and carers for parents and carers, we have always been able to truly understand the needs of our members and build services that met their needs. In 1999, CPSN developed the CP Respite Brokerage Program (which would later become CP Innovative Choices).
Two decades after our incorporation, CPSN now supports over 1600 members across all of Victoria. We are the only CP specific organisation in Victoria that supports families and individuals across the life course, as a such as considered as a sector peak.
3. Our services
CPSN’s flagship service which enables parents and individuals with CP to recruit and manage their own support workers.
Unlike traditional disability services agencies, support workers are managed directly by the program participant, with CPSN employing the support worker on their behalf.
Participants liaise directly with the chosen support worker whilst CPSN supports participants with all the employment obligations. We help participants ensure their support workers are properly employed, and we provide them with the information and training needed to manage their day-to-day duties and performance.
Participants negotiate and communicate directly with their support worker – removing the ‘middleman’. CPSN manages pay, entitlements and compliance of the support workers on the participant’s behalf. Innovative Choices works for any type of funding, NDIS, DHHS, Funds in Court and TAC.
Operating in all areas in Victoria, Australia. Currently 140 families are using the service. More information here.
Available to approved NDIS funded participants, it is designed to link participants with the right services and help manage the different supports needed to achieve the goals in their NDIS plan. CPSN support coordinators work creatively and resourcefully with participants in how they utilise their support budgets.
Support Coordinators also negotiate services to be provided and their prices, act as a link to mainstream or community services, assisting the participant get ready for their plan review and strengthen capacity in participants to manage their own supports. Currently 94 people utilise our support coordination service. More information.
Our free service for members, the Care Centre, staffed by trained and experienced team members, offering advice, support and resources to parents and individuals. Cerebral palsy is the fastest growing childhood physical disability in Australia, with a child born with the condition every 15 hours. CPSN has a complete understanding of the challenges faced by people with cerebral palsy and their families at all stages of life.
The Care Centre is available by phone and email inquiry Monday-Friday from 9am-5pm and provides varied support including advice on all matters cerebral palsy, information about cerebral palsy, one on one support to families facing specific issues, linking people to other relevant services and responding to general questions or concerns.
It also aims to improve mental health and wellbeing in parents and carers and supports issues around the trauma of receiving a child’s diagnosis of cerebral palsy; the inability to find services relevant to their child (such as paediatricians, allied health, optometry and dentistry); problems with their child’s school or education to support their needs and coping with daily stress when raising a child with cerebral palsy. Last year the Care Centre supported 124 families. More information.
4. Our current Board Members
5. Board position descriptions
6. Organisational structure
7. Our Senior Leadership Team
8. Our 2018 Annual Report