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What does it mean to have cerebral palsy?

"What does it mean to have cerebral palsy?" For many, answering this question will conjure up images of awkward gaits and electric wheelchairs, slurred speech, and stiff, jerky, writhing, and otherwise poorly controlled movements. These characteristics would certainly be consistent with the accepted definition of cerebral palsy as a disorder of movement and posture. But how useful is this type of definition when trying to explain other common experiences of people with cerebral palsy, such as being denied access to education, struggling to find work, facing difficulties with forming close relationships, living at home with parents well into adulthood, and so forth?

 

Why Cerebral Palsy Isn't Something I 'Battle', 'Fight' or 'Suffer From'

Dear Cerebral Palsy,

We go back a long way, CP. You might say you’re my life partner, my ride-or-die companion or that Facebook friend with whom “It’s complicated.” Especially during March — cerebral palsy awareness month — a lot will be written about you, and so much of it, by people who only think they know what life is like with you. So, as someone who really knows you, deeply and completely, I hope anyone who wonders will read this and learn the truth about our adventures...



Why I Long for Sponaneity as a Young Person with CP

If there is one thing I could say to summarize what makes my life unique from that of the average 22-year-old, it would be, “Damn, this ‘existence’ gig takes a lot of planning.”...



Stem Cell Therapy update from AFRM

Clinics in several countries currently offer stem cell therapies to children with CP, and some Australian families are utilizing the services of these clinics. There is concern that treatments offered in these clinics may not be based on experiments conducted with scientific rigour, and that sufficient safety controls may not be in place....

 

Welcome To Holland

I am often asked to describe the experience of raising a child with disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel.
It's like this......

 

 

20 Things For Parents To Know

Here are 20 things that all parents of kids with special needs ought to hear and know.
No. 1 - You are not alone...